A diagnosis of early onset scoliosis could have placed numerous surgeries on young Will Imbus’s calendar. But in 2015, UI Stead Family Children’s Hospital became the first hospital in Iowa to use newly available technology called the MAGEC (MAGnetic Expansion Control) Spinal Growing Rod, technology that eliminated nearly 10 surgical procedures from Will’s treatment.

Will Imbus doesn’t like to sit on the sidelines. The 13-year-old sports fanatic loves playing outdoors, but unlike most kids his age, he knows not to take these activities for granted.

At just 9 months old, when the Imbus family lived in East Dubuque, Will was diagnosed with early-onset scoliosis (EOS)—an abnormal, side-to-side curve of the spine in children under 5 years old. Left untreated, the curve can impede lung growth and development.

“The most important time for lung development is the first four years of life,” says Stuart Weinstein, University of Iowa Stead Family Children’s Hospital orthopedic surgeon. “So anything that restricts the chest cavity or shortens the spine will impair lung growth, and hence, shorten a child’s life.”

x-ray of the MAGEC rods in Will Imbus

Will Imbus’s MAGEC (MAGnetic Expansion Control) Spinal Growing Rods allow him to spend time in an outpatient setting, while an external controller non-invasively manipulates a magnet in the rod until it reaches the appropriate length.

The traditional treatment for EOS requires patients to undergo operations where titanium rods are surgically implanted into the back, across the spinal curvature. Every six months, surgeons reopen the incision site and lengthen those rods to keep up with a child’s growth.

“It causes tremendous stress in the life of a child and the family,” Weinstein says. “Plus, an inpatient surgery means a few days off from work for parents and some time off from school for the child. There are also a lot of costs associated with having an operation every six months.”

From 2011 to 2015, Will had seven growing rod lengthening surgeries.

“Every time he went down for surgery, he had restrictions and pain afterward,” says Will’s father, Jeff.

Fortunately, repeated growing rod surgeries for Will and other EOS patients are becoming a thing of the past. In January 2015, UI Stead Family Children’s Hospital became the first hospital in Iowa to use newly available technology for all EOS patients called the MAGEC (MAGnetic Expansion Control) Spinal Growing Rod. Rather than undergoing surgery twice a year, these new rods allow children to spend time in an outpatient setting, while an external controller non-invasively manipulates a magnet in the rod until it reaches the appropriate length.

dr. weinstein performing surgery to insert Will's MAGEC rods
Will Imbus underwent surgery to implant the MAGEC rods in March 2015. After wearing a temporary brace to protect his incision site, he had his first outpatient lengthening procedure the following June. In the years since this surgery, Will has been able to participate in baseball and basketball and loves to golf.

For most children with EOS, this new technology will eliminate six to 10 surgical procedures during their childhoods. It will also eliminate post-surgical restrictions, time spent in the hospital, and hospital costs associated with inpatient hospital stays.

Will underwent surgery to implant the MAGEC rods in March 2015. After wearing a temporary brace to protect his incision site, he had his first outpatient lengthening procedure the following June. He continues to return every three to four months for lengthenings, and he will have one more major surgery to remove the MAGEC rods and put in permanent rods when he has finished growing.

Weinstein and his colleague, pediatric orthopedic surgeon Joshua Holt, MD, care for almost all of the state’s pediatric spinal deformity patients. They are in the process of replacing the traditional growing rods with the MAGEC rods in all of their other EOS patients. So far, the feedback from patients and families who have received the MAGEC rods has been overwhelmingly positive.

“I wasn’t quite sure how we or he would handle the rest of these surgeries every six months until we got to the point of the permanent rods,” says Will’s mother, Nicole. “I don’t think there’s anything I could say great enough to show my gratitude.”

Will Imbus, Stuart Weinstein, and Nancy Love posing for a group photo during one of Will's follow-up visits to UI Stead Family Children's Hospital

Will Imbus and his family have formed lasting relationships with his UI Stead Family Children’s Hospital care team, particularly Stuart Weinstein, MD (center), and Nancy Love (right), a member of the orthopedic surgery administrative team.

Will is an almanac of sorts when it comes to sports statistics, quoting numbers from decades well before his birth, but he’s not just an observer when it comes to athletic activity. In recent years, Will has been able to play baseball and basketball and he loves to golf. Nicole doesn’t even rule out the possibility that her son might be able to try snowboarding someday.

Despite all he has been through, Will has maintained his quick sense of humor and bright smile.  And even though the family moved from East Dubuque to Mount Horeb, Wisconsin, Will remains a huge Hawkeye fan, even in the heart of Badger country. That’s a credit to the lasting relationships Will and his family have formed with his UI Stead Family Children’s Hospital care team, particularly Dr. Weinstein and Nancy Love, a member of the orthopedic surgery administrative team.

“We could have Will’s treatment done in Madison—they have the technology and it’s much closer—but we feel like the people at Iowa are our family now,” Nicole says.

Will, who takes a photo with Weinstein and Love at nearly every visit, echoes those sentiments.

“I feel like they’re my family because I get to see them a lot,” says Will. “They give me really good care.”

University of Iowa Stead Family Children’s Hospital’s staff of specialists offers surgical and rehabilitative care to treat both young patients with adolescent scoliosis and older patients with degenerative scoliosis. Click the link below or call 888-573-5437 if you are seeking care for yourself or a loved one.

Produced by University of Iowa Health Care Marketing and Communications